Five-year-old Symerien has one of the rarest medical conditions on the planet, but her myriad health problems are just one part of a life spent fighting against the odds for her and her carer Sharyn.
From https://jamesjohnson10.blogspot.com/2019/10/only-four-people-suffer-from-one-of.html
from
https://jamesjohnson10.wordpress.com/2019/10/30/only-four-people-suffer-from-one-of-the-worlds-rarest-conditions-symmie-is-one/
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