Members of this support group all carry the same fatal gene and are using it as a jumping off point to help others.
From https://jamesjohnson10.blogspot.com/2019/05/would-you-want-to-know-if-you-had.html
from
https://jamesjohnson10.wordpress.com/2019/05/30/would-you-want-to-know-if-you-had-inherited-a-fatal-gene-from-your-parents/
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